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ALS - Our Stories - "Bring your authentic self!"
#IWrite-ALSChallenge
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Living with ALS
Living with ALS, or amyotrophic lateral sclerosis, is an experience that profoundly reshapes every aspect of life. This disease, often referred to as Lou Gehrig's disease, is a progressive neurodegenerative disorder that affects motor neurons in the brain and spinal cord. These neurons are crucial for muscle control, and as they deteriorate, the ability to initiate and control muscle movement is lost.
In the early stages, the signs can be subtle—a slight weakness in a hand, some difficulty walking, or slurred speech. It can be easy to dismiss these symptoms as minor or temporary. However, as the disease progresses, the changes become more pronounced and more challenging to manage. Everyday tasks that were once second nature require immense effort and, eventually, become impossible without assistance.
The physical decline is relentless. Muscles weaken and atrophy, leading to loss of mobility. Walking turns into shuffling, and eventually, even standing…
A Dance of Love
Listening to my husband describe how ALS affects him is one of the most heart-wrenching experiences I've ever had. We've been navigating this journey together for a while now, but each day brings new challenges and revelations. When he talks about the disease, there's a mix of frustration, vulnerability, and resilience in his voice that cuts straight to my heart.
The other day, he mentioned feeling particularly weak when he's moved into certain positions during our transfers. As his wife and caregiver, it's my responsibility to ensure his comfort and safety, but more than that, it's my deep desire to make him feel as secure and supported as possible. Hearing him talk about that weakness—it’s like a dagger. I can't help but feel a pang of helplessness, wishing I could do more, be more for him.
We sat together, and he explained how his muscles just…
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Last year, my 68-year-old partner was diagnosed with Lou Gehrig's disease also known as ALS. Speaking and swallowing were two of his challenges. His collapse was swift and catastrophic, and neither the riluzole nor the medical staff did much to aid him. He would not have survived if our primary care physician hadn't given him attentive care and attention, as the hospital center didn't provide any psychological support. His fall was abrupt and catastrophic. His hands and legs gave way to weakness in his arms. This year our family physician suggested using vinehealthcentre. com ALS/MND treatment, which my husband has been receiving for a few months now. I'm delighted to say that the treatment greatly reduced and reversed his symptoms of ALS, he no longer requires a feeding tube, sleeps soundly, works out frequently, and is now very active. In the hopes that it could be useful, I thought I would relate my husband's tale; in the end, you have to do what suits you the best.Â